Notices

• 11/30/01 Notice: Cleaner Air signage and pictogram ADOPTED by California Building Standards Commission on Nov 28, 2001.
  
  
• 02/20/2001 Notice: Dursban, Other Pesticide. Notice. Updated February, 2001. This was a notice last year of an EPA study which was going to conclude Sept 1998 but has been extended and is still on going.
  
  
• 03/21/2000 Notice: Pesticide May Reduce Testosterone
  
  
• 03/21/2000 Notice: Countries Talk About Banning DDT
  
  
• 01/27/2000 Notice: Proposal to Build a Housing Community for People with MCS
  
  
• 01/18/2000 Notice: Check out the Center for Food Safety if you are concerned about genetically modified foods. Read the news article "Why Genetically Altered Food Won't Conquer Hunger" September 1, 1999. This news article loads fairly slowly due to being a photo.
  
  
• 01/18/2000 Notice: News Article "Brain abnormality found in vets with Gulf War illness" December 1, 1999. This loads fairly slowly due to being a photo.
  
  
• 11/08/1999 Notice: Ban Dursban
  
  
• 10/14/1999 Notice:School Environment Protection Act (SEPA) Press Release.
  
  
• 7/12/1999 Notice: Multiple Chemical Sensitivity: A 1999 Consensus.
  
  
• 6/3/1999 Notice: State of Wisconsin, Department of Workforce Development Bulletin, Week of May 3-7, 1999 #146:Toxic air alert
  
  
• 5/27/1999 Notices submitted by Amy Marsh:
  • 5/26/1999: Chemicals contained in "Eternity" Fragrance
  • 5/26/1999: Petition the FDA to have "Eternity" misbranded: Activist Kit
  • 5/26/1999: News Release: Environmental Health Network Petitions FDA to have Toxic Fragrance "Misbranded"
  
  
  
• 4/29/1999 Notice: SHARE YOUR MCS STORY From Ohio Network for the Chemically Injured.
  
  
• 4/29/1999 Notice: An Innovative Disability Accommodation From Ohio Network for the Chemically Injured.
  
  
• 4/20/1999 Notice: ACTION ALERT from the National Coalition for the Chemically Injured: LAST CHANCE TO STOP FOOD IRRADIATION COMMENTS TO FDA NEEDED BEFORE MAY 18
  
  
• 4/20/1999 Notice: REPORT ON THE RESEARCH PLANNING CONFERENCE IN ATLANTA FEB. 28-MARCH 2 by Alice Osherman. ( Representing NCCI). Title: The Health Impact of Chemical Exposures During the Gulf War: A Research Planning Conference. Part One of Two.
  
  
• 4/20/1999 Notice: REPORT ON THE RESEARCH PLANNING CONFERENCE IN ATLANTA FEB. 28-MARCH 2 by Alice Osherman. ( Representing NCCI). Gulf War Conference in Atlanta, 1999. Part 2 Recommendations for research projects. Part Two of Two.
  
  
• 11/23/1998 Notice:Press Release from the Ohio Network for the Chemically Injured, "MCS Advocacy Group Responds to Federal Interagency Workgroup Report on Multiple Chemical Sensitivity". The Interagency Workgroup Report on MCS must be responded to by December 15th. Please either request a copy by calling 1(800)447-1544 or review the online version via http://web.health.gov/environment. The response from the Ohio Network for the Chemically Injured is an 18 page document which would be helpful to you in formulating your own response.
  
  
• 04/17/1998 Notice: Multiple Chemical Sensitivity Awareness Week 5/11-5//17/98 declared by Governor of Conn.!!
  
  
• 04/17/1998 Notice: Press Release from National Coalition for the Chemically Injured (NCCI)
  
  
• 04/16/1998 Notice: Phone number change for Ohio Network for the Chemically Injured. New number is (440)845-1888
  
  
• 03/26/1998 Notice: USDA's Proposed Rule contradicts the Organic Foods Production Act of 1990. This is a one page letter with two additional pages of detailed listings of violations of the OFPA. It is recommended that you download either the text (Rich Text Format) or Word 6 format, personalize the letter and mail it ASAP. To view, but not download, select View Letter.
  
  
• 06/26/97 Notice: See the new section on Hospitals!
  
  
• 01/20/97 Notice: For a copy of August, 1996, The McAlvany Intelligence Advisor's report entitled 'Special Report, Germ Warfare Against America: The Desert Storm Plague and Cover-Up', call 1(800)525-9556. It is 40 pages. For Gulf War Vets he will send up to 5 copies to you free. For other folk one copy is $5 (or $3 each for 25 or more copies). Contents include: What is Gulf War Illness (GWI)?, Where did Gulf War Illness come from?, U.S. Government Involvement in Biological Warfare, The U.S. Government coverup of the Gulf War Plague, The sad death of a Gulf War veteran, Methods of treatment of GWI, Conclusion and recommendations.
  
  
• 01/14/97 Notice: MCS RESEARCH FUND CREATED, January 1997, by Cynthia Wilson
  Credible research is the ammunition that will win the war for recognition, accommodation and acceptance of MCS. So it is with great pleasure that the Chemical Injury Information Network (CIIN) announces the formation of a new division, the MCS Research Fund (FUND). The FUND is dedicated to funding research on multiple chemical sensitivities (MCS) as physiological illness.
  

  At the April 14, 1993 meeting sponsored by the Agency for Toxic Substances and Disease Registry, one of the participants stated that people who suffer from MCS shouldn't look to the government for research funds. And while research proposals on MCS have been submitted to various governmental agencies, no researcher investigating MCS as a physiological condition has, to CIIN's knowledge, received funding.
  

  In addition, this lack of government funding has made it impossible to take clinical knowledge about MCS and conduct the much needed double-blind tests that will validate those findings.
  

  The way the US government is investigating Gulf War Syndrome, the MCS community may be glad its government has ignored its research needs. It appears the US government is no more interested in finding physiological cause(s) for Gulf War Syndrome than the chemical industry is in funding one for MCS. In fact, the best research currently being conducted on Gulf War Syndrome has been privately funded.
  

  CIIN's decision to form the FUND was based on the outstanding research on fund raising done by Tessa Lachman. Ms. Lachman investigated how the CFIDS organizations became so successful. While not everything the CFIDS organizations did can be applied to the MCS community, CIIN felt Ms. Lachman had provided the key to a whole host of possibilities.

  To go forward, CIIN has proposed the following strategies to raise research money for the FUND:

  1. Hire a professional fund raising firm. CIIN believes there is a need to reach the healthy population not only to raise awareness of MCS but to raise the much needed research funds.
  2. Ms. Lachman will chair the fund raising committee that will approach health food stores about placing collection boxes. Information on health food stores that should be contacted should be sent to Ms. Lachman at Rt.1, Box 284, Purcellville, VA 22132. Please include the name of the owner or manager, name of the store, address,and phone number.
  3. There are businesses and professionals that are sympathetic to MCS. They need to be identified and approached.
  4. It is important to gather the names and addresses of friends and family members of people with MCS. Ms. Lachman's research showed that friends and family members will respond to requests for research funds even when they won't help fund a support group.
     
     Names and addresses of friends, relatives, and other persons should be sent to the FUND at PO Box 301, White Sulphur Springs, MT 59645. It is as important that these people be asked to help, but they should be left to their own consciences as to whether they will respond. The CFIDS organizations raised over $400,000 for research because they asked for help.
  5. The support of the various suppport groups is also needed. To facilitate support group involvement, CIIN contacted over 150 different organizations concerning its intent to form the FUND. Each support group was asked to either initiate a special fund raising project or designate a percent of an existing fund raising project to help support the FUND. CIIN will contribute 5% of the income derived from its Resource Directory (in addition to underwriting the start up costs) and the Environmental Access Research Network has agreed to contribute 5% of all donations. The Ecological Health Organization & Action Coalition in Connecticut, Chemical Sensitivity Disorders Association in Maryland and the Response Team for the Chemically Injured in California will be discussing proposals for supporting the FUND at their next Board of Director meetings.
  6. Tax-deductible contributions from individuals who suffer from MCS are also important.

  Linda Wilson has generously offered to donate 5% of her net from rental properties and is recommending that other property owners do the same.

  John Wilson, CIIN's President, will also serve as the Director for the FUND.

  Doctor Gunnar Heusar, Dr. Rosalind Anderson, Dr. Eloise Kailin, and Dr. William Morton have volunteered to serve on the medical advisory board. CIIN has contacted Dr. Barry Johnson, Co-Chair of the US Interagency Taskforce on MCS about a member of its organization serving on the board and has requested a referral to a statistical design expert who might be interested in volunteering.

  The Advisory Board will peer-review the research funding requests and will make recommendations on the priority of the projects to be funded. Dr. William Meggs, Dr. Rosalind Anderson, and Dr. Barbara Sorg have already submitted research proposals.
  

  Note: Please feel free to pass on to other lists etc. on the internet- Ginny Kloth CIIN Director of Electronic Communications.
  

  MCS-IMMUNE-NEURO@Home.Ease.LSOFT.COM is a support/information list for those bothered or injured by chemicals and have auto-immune or nervous system problems as a result of chemical injury. Ginny Kloth-Owner (bijou@blrg.tds.net) Ginny Kloth is Director of Electronic Communications for the Chemical Injury Information Network (CIIN) the world's largest and fastest growing CI support organization, active in 33 countries, and has access to the most progressive, comprehensive, accurate information on chemical injury and sensitivity available. Email: mcs-immune-neuro-REQUEST@home.ease.lsoft.com for subscribe information.
  
  

• 1/10/97 Notice: As you may already know, the Environmental Protection Agency is proposing amendments to revise and tighten the national ambient air quality standards (NAAQS) for both particulate matter and ground level ozone because of their concern about their health effects on vulnerable members of the population (i.e. children, the elderly, and ill). They will be taking comments from the public for a two month period from December 13, 1996, through February 18th, 1997.

  The chemical and oil industries are already well organized against this legislation under the dubious name of the Air Quality Standards Coalition. If *You* would like to make your voice heard on this matter, the EPA is inviting public comment, so please take a moment to speak out, and here is how to do so by regular mail, email or toll free hotline #:

  Via Toll Free Telephone Line: 1-888-TELL-EPA (1-888-835-5372)
  Via email, address general comments to: general.comments@epamail.epa.gov
  Via Regular Mail:
  U.S. Environmental Protection Agency
  Air Docket (6102)
  Attn: Docket #(identified below)
  Waterside Mall, 401 M Street, SW
  Washington, DC 20460
  

  Identify mailed, written comments with specific docket No.'s:
  Ozone NAAQS Proposal: Docket #A-95-58
  Particulate Matter NAAQS Proposal: Docket #A-95-54
  Particulate Matter Monitoring Proposal: Docket #A-96-51
  

  Please note all comments must include the author's name, address and affiliation (i.e. company, private citizen, organization, etc.). If you would like further information or a full copy of the federal register and proposed legislation (it's technical and difficult to read, however), please call 800-424-4372, ext. 6706.
  
  

• 12/12/96 Notice: Dr. Pam Gibson of James Madison University is seeking additional participants for her study of the life impacts of having multiple chemical sensitivity / chemical injury. If you are willing to join the study and complete a survey, please send your name, address and phone number to Pam Gibson, James Madison University, Dept. of Psychology, Harrisonburg, VA 22807 or email her with the information to gibsonpr@jmu.edu or call (540)568-6195 and leave your information on her answering machine. Those already in the study will soon receive a follow-up questionnaire. Thank you for your help. See Articles below for a list of Dr. Gibson's articles.
  

These listings have been gathered from various sources and are presented here with the intent to provide hard won information to anyone whom it may help. If you find that the names, phone numbers, addresses or such are out of date in any way, or you feel there is a significant change or addition which should be made to these resources, please be so kind as to email us .

Disclaimer: We do not endorse people, products or services. We do not give medical advice. What works for one person does not necessarily work for another. Please check with health-care professionals of your own choice. I am not a doctor and I do not give medical advice. The author is a chemically injured person who is extremely chemically sensitive (reactive) and who has just had a lot of personal experience in trying to survive chemical insults and toxic exposures.