Newsgroups / Listgroups

Most people who are severely chemically sensitive live in isolation with limited contact with others in order to protect their health. It is important to develop NEW friends (the old ones abandon you since you don't have a 'real' illness). Relatives who just can't live without their hair spray and fabric softeners stop visiting also. The Internet provides a means for all of us to make new friends, exchange ideas, offer help to others, etc.

• Multiple Chemical Sensitivity / Chemical Injury
  MCS-CI-exile is an unmoderated discussion forum for MCS (multiple chemical sensitivity) , EI (environmental illness), CI (chemically injured). Information is exchanged by those wanting to move forward, and is for the benefit of sufferers hoping to acquire help in learning to understand, cope and adjust to MCS, EI, CI as they relate to their own individual and personal health concerns, as well as the much broader impacts on reciprocal relationships including, but not limited to, familial, social, global, medical/ scientific research/ health care, economic, workplace, educational, political, environmental, advocacy, legal, accommodation/ access, lifestyle and governmental realms.
  
  Send a blank message to subscribe: MCS-CI-exile-subscribe@onelist.com
  
  Or go to: http://www.onelist.com/group/MCS-CI-exile/
  
  Or
  Click to subscribe to MCS-CI-exile
  
  
• For subscription instructions for the Immune group, go to
  http://www.best.com/~immune
  or send email to: immune-request@lists.best.com with the sole word 'info' in the body of the message.
  The contact address is Cyndi Norman, immune@best.com The associated web pages are http://www.best.com/~immune.
  
  
• MCS-IMMUNE-NEURO list has joined the prestigious family of medical lists at St. John's University!
  

  MCS-IMMUNE-NEURO on listserv@maelstrom.stjohns.edu
  

  MCS-IMMUNE-NEURO is a discussion group for people with MCS (Multiple Chemical Sensitivities)/Chemical Injury, Desert Storm illness, Agent Orange exposures, silicone injuries, porphyria and other autoimmune diseases and nervous system disorders that may be the result of or exacerbated by chemical injury/exposures.
  

  GOALS:
  

  1. To provide an exchange of information (medical and scientific studies);
  2. To provide a friendly forum for discussions regarding symptoms, medical tests/treatments and lifestyle changes;
  3. To offer a caring and supportive *stress free* environment in order that health may be regained and lives may be changed for the better;
  4. To show there is hope for recovery. There is not (as of yet) a cure but there IS life beyond chronic illness andespecially so with MCS/Chemical Injury.
     

  Join the relocated MCS-IMMUNE-NEURO list, send email to:
  listserv@maelstrom.stjohns.edu
  In the BODY write: SUBSCRIBE MCS-IMMUNE-NEURO Your Name
  

  The list offers a digest version and keyword searchable archives which can be accessed via email and through a website interface. Owner/Moderator: Ginny Kloth (bijou@blrg.tds.net), Director of Communications, Chemical Injury Information Network (CIIN)
  
  

• MCS-Fellowship List
  for information email a help message to
  mcs-fellowship-request@home.ease.lsoft.com
  This list is a place for all chronically ill people to share prayer requests, devotions, and to talk about spiritual aspects of their situation.
  To join send email
  To: LISTSERV@HOME.EASE.LSOFT.COM
  Subject:
  Body: SUBSCRIBE MCS-FELLOWSHIP Your Name
  

These listings have been gathered from various sources and are presented here with the intent to provide hard won information to anyone whom it may help. If you find that the names, phone numbers, addresses or such are out of date in any way, or you feel there is a significant change or addition which should be made to these resources, please be so kind as to Contact Us.

Disclaimer: We do not endorse people, products or services. We do not give medical advice. What works for one person does not necessarily work for another. Please check with health-care professionals of your own choice. I am not a doctor and I do not give medical advice. The author is a chemically injured person who is extremely chemically sensitive (reactive) and who has just had a lot of personal experience in trying to survive chemical insults and toxic exposures.